Steps to somewhere.
Hope you have a good weekend everybody!
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Steps to somewhere.
Hope you have a good weekend everybody!
Today, I went and found my brother, Mark. He was lying on the sidewalk at a busy entrance to a shopping center. Cars were whizzing by. Another man was sitting there with him and, as I approached them, I could see that Mark was giving him money and asking him to count it. I was immediately suspicious. I asked my daughter to remain in the car.
I walked up quickly and called Mark’s name as I always holler his name before approaching him so not to startle him. I waited until he recognized my voice before I began conversation. Mark pulled another dollar bill from his pocket and asked me what denomination it was. I was concerned that maybe he was buying street drugs. No, that wasn’t it. Here sat another homeless person who had talked my blind brother into giving him all his money to buy a gold pocket watch. He laid out $14.00 which was all that he had. Unless that watch could verbally tell time, what on earth would a blind, gravely disabled man need with a pocket watch?
Good thing I had brought him food, water, and clothing. Mark was shirtless, but had a very heavy coat on. Today, the temperature is supposed to reach 98 degrees. I begged him to take off the coat. He refused saying the coat would be stolen. He was extremely sunburned already. The wounds on his face and around his empty eye sockets were still badly infected from two different beatings several weeks ago when he was robbed. Today, all he had with him was a small blanket. His clothing was disintegrating as he wore the same pair of pants all through the winter and spring. He didn’t have a cane to guide him. He has had 11 different canes this past year.
I sat down next to Mark and, within seconds, it was obvious that he was delusional. He grabbed my hands and slapped them down, hard, on his leg that has a metal rod from crotch to ankle. He held both my hands down with his hands. His hands looked like leather and were cracked and bleeding. Regardless, he continued to hold my hands tightly. His entire body was trembling. He said, “We have to go back and erase each year that has passed since June 21, 1987 (the date of his motorcycle accident). Rewind and erase.”
I was shocked that he still knew that date. Yes, it was Father’s Day, but he still remembered the actual date. He proceeded to say each year backwards to 1987. With each year, he said, “Rewind & Erase!” He shook, violently, until he reached 1987. Then he grabbed and hugged me and said,” Now, don’t you feel better?”
I told him, “Yes, and I hope you do too.” He began to argue with the voices in his head, screaming that the police were implanting and growing people inside of people and controlling them. I tried to calm him and get him to eat the food I had brought him. He would take a bite, chew tiny bites, and then spit it out.
He brought up my twin. Mark doesn’t always comprehend what I tell him, but I continue to tell him the truth. CJ, my twin sister, had gotten bad news about a medical diagnosis. I shared her condition with him. He began yelling at the voices he hears and blaming those voices for all the pain and suffering of those he loves. The intent of his body language was to beat himself up. I hugged him, and once again reminded him that I love him — as I do on every visit. He didn’t want to let go and held on tight for a while. As I was saying goodby, he began crying. He said, “Someone disconnected me from my mother. They’re cutting out pieces of me.”
I slowly walked away, feeling sick to my stomach. If only I could “rewind and erase” all the horrible memories, delusions, pain, and suffering he’s had for the last three decades. Yes, Mark, I would feel better.
Linda adds: Every letter/email I’ve sent out has also been sent to the County Board of Supervisors. I’ve sent out over 1200 emails and my twin, CJ, has sent as many. Each time, we copy agencies and politicians. We’ve saturated them. We’ve sent out thousands of private messages all over the state, and made thousands of posts and comments in over 100 social media groups all over California. CJ authored the petition for AB1971* and we collected 56,000 signatures that went to the full assembly and senate. I’ve made 30 speeches speaking at public meetings. I’ve testified twice at the capitol in support of AB1971.* I’ve gone to the capitol and told my brother's story to support several other bills. There have been 12 news articles and TV interviews. Mark’s story has been published in three national blogs and used at medical conferences. We’ve friended, and are in contact with, several well-known national mental health advocates — Ron Powers, Teresa Pasquini, Leslie Carpenter, Dede Moon Ranahan, and DJ Jaffe to name a few. The Board of Supervisors are ground zero. They are aware of all that we’ve done. They stay silent and do not converse with our family. The next project we are working on is a documentary. I have many, many videos of my visits on the streets with Mark. We will make the videos available to politicians and to the public. They are undeniable. When they are shown, Solano County should hang its head in shame.
Note: Solano County has declared Mark to be competent.
*AB1971. This bill would, until January 1, 2024, expand the definition of “gravely disabled” for these purposes, as implemented in the County of Los Angeles, to also include a condition in which a person, as a result of a mental health disorder, is unable to provide for his or her basic personal needs for medical treatment, if the failure to receive medical treatment, as defined, results in a deteriorating physical condition that a medical professional, in his or her best medical judgment, attests in writing, will more likely than not, lead to death within 6 months, as specified.
See Linda’s story, “I’m Past Anger. I’m in Complete Despair.” June 6, 2019, in the archives.
Walk in Tasmania.
Hope you have a good weekend everybody!
Daisy dance…
Hope you have a good weekend everybody!
On Sunday, I visited Travis. I didn’t see him in May because our visiting day fell on Mother’s Day which I spent with family. He walked into the visiting area and, at first, I didn’t recognize him. His hair’s been shaved short — for summer — and he’s growing a beard. He looked great. I told him, “I really like your haircut. And your beard.”
We hugged and Travis said, “I finished reading your book.” (His mother, Kathy, sent him a copy.) Then he said the most perfect thing, “I love Pat. I love all his Facebook posts. He’s so funny. And smart. I think he’ll be an influencer for our generation. I copied the list of his favorite books. I’m going to read all of them.”
Travis’s eyes filled with tears as he spoke. My eyes filled with tears as I listened. Travis was clearly moved. “I totally get him,” he said. “I like him so much.” More tears.
I’m getting such heart-felt reactions to Sooner Than Tomorrow. In reviews, in emails, in cards and letters. Many have commented about Pat and his sense of humor. But, hearing about him from Travis, in person, with tears in his eyes, was mind-blowing for me.
I reached for his hand. “Thank you,” I said.
“I wasn’t sure what to expect when I began reading your book. And then I couldn’t put it down. You’re such a good writer.”
Travis is reading other books, too. He’s taking a college health class during the summer. “It’s really interesting. I’ve read the first three chapters. It’s about physical health, mental health, emotional health — about keeping everything in balance. I’m ready for these college classes. I wasn’t ready for them before I was sent to prison. My self-esteem is much better now. I know I can study and learn.”
Travis was also pumped about a basketball tournament he took part in on Saturday. His team (“We were the ‘crazy’ team. All of us have psych issues.”) beat five other “normal” teams. “We were champions for the day. We never played together before and we just clicked. Sports are important to me. I ran 10 miles (around the prison yard) for the soldiers who died on D-Day. To honor them. I’m in the best shape of my life.”
I asked Travis if there had been any more discussion about transferring him to a prison closer to his family in Southern California. He said, “They’re not going to move me right now. My psychiatrist and my psychologist are going to take me off lithium. It’s affecting my thyroid. Then I won’t be taking any medications. They want to watch me and see how I react. We’re all hoping I can function okay without meds.”
Travis likes his medical team. He thinks they’re competent. He thinks they care about him. “They like me,” he said. “I tell them about my feelings and my emotions. Not every client is open with them and they appreciate that I am.”
“I’m growing,” Travis continued. “I’m making the most out of my time in prison. I’m working out. I’m reading. I’m writing songs for our church service. I’m a better person than I was.”
“Travis, it sounds like you’re focusing on the positive aspects of being here. Do you think other inmates do that?”
“I don’t know. I don’t want to judge anyone else. Probably not everyone does. There are fights and other bad stuff happens. Being here is forcing me to know how to interact with others. It’s not always easy living with my cellie, but I’m learning about relationships. I was kind of a recluse before I came here. I managed a motel in the mountains and I spent a lot of time by myself.”
It feels like our conversations are evolving. Travis asked me questions, too. “How are you doing, Dede?” (good) “How’s your mom?” (good) “How’s The Jazz?” (good) “What books are you reading?” (Mama’s Last Hug by Frans De Waal, I Miss You When I Blink by Mary Laura Philpott, Another Rubber Chicken Dinner by Bev Chinello)
Visiting hours ended. It was time to leave. “Have a good month, Travis. I’ll see you in July.”
I always turn to wave at Travis as I walk away. He’s always waiting. And he waves back.
http://www.bit.ly/soonerthantomorrow
Hummingbird eggs in a nest outside my kitchen window.
Hope you have a good weekend everybody!
June 1, 2019
Dear friend,
On Friday afternoon, we gave notice for 4,000 Kaiser Permanente mental health clinicians and health care professionals to begin an open-ended strike on June 11, all across California. NOTE: THIS STRIKE DID NOT TAKE PLACE
This is not an action our members took lightly. For the past decade, Kaiser psychologists, therapists, social workers and psychiatric nurses have been fighting management to fix its badly broken mental health system, which forces patients to wait weeks and even months for care. And these caregivers are committed to working around the clock over the next 10 days to find immediate solutions to address this crisis without a strike.
But the situation at Kaiser has become untenable for both patients and clinicians.
Last Tuesday, Kirstin Quinn Siegel, a Kaiser therapist, told Berkeley council members that she had a patient in one of her group sessions who recently had to defend her three children from an intruder in their home. “She’s clearly in distress,” Quinn Siegel told council members. “Her next appointment with an individual therapist is in July.”
Wait times are even longer in Southern California.
Tanya Veluz, a Kaiser therapist in Pasadena, told USC Annenberg Media last month that her patients have to wait three months for an appointment even if they’ve lost a loved one or have bi-polar disorder.
“It's extremely disheartening to sit there and tell someone you can't see them — And you watch them not getting better,” she said. “We do everything possible. We stay late, we call patients, we try, but definitely it's heartbreaking and burns people out."
Kaiser mental health clinicians sounded the alarm in December with a five-day strike. But Kaiser still refused to address the problem. Now appointment wait times are longer than ever. While we have seen some movement from Kaiser during recent negotiations, Kaiser’s most recent proposals won’t stem the crisis.
Kaiser’s proposal to add clinicians dedicated to doing intake appointments would help it meet regulatory requirements for new patients, but wait times for return appointments would grow even longer. Dedicated intake specialists would bring in more new patients faster, but Kaiser has no plan to increase staffing as needed to provide these patients with reliable and consistent ongoing care.
Adding appointment clerks won’t keep clinicians from having to use their lunch time and evenings -- all without pay -- to squeeze in calls to desperate patients who can’t be seen. These clerks won’t have the clinical training to know when patients need urgent attention and should go straight to the front of the line. Clinicians never asked for appointment clerks because they knew it would just create one more bureaucratic obstacle for patients trying to connect with qualified caregivers.
Kaiser is struggling to hire full-time therapists willing to accept its relentless working conditions. It surely won’t be able to hire enough temporary clinicians to significantly increase appointment availability in a system that staffs just one full-time equivalent therapist for every 3,000 Kaiser members.
Neither will Kaiser’s under-staffing of its mental health clinics be alleviated by dedicating more recruiters to fill those jobs. It can only be alleviated by Kaiser budgeting for more positions and improving working conditions to reduce turnover.
Our members have proposed real solutions that are focused on improving access to care.
We are proposing a requirement that Kaiser must hire new clinicians to fill its newly-constructed office spaces. This would avoid a repeat of what happened this year in Fairfield, where Kaiser built new office space for 38 mental health clinicians but didn’t hire any new staff.
We are proposing that Kaiser establish crisis teams at all locations, so new patients in crisis can get the care they need without clinicians having to cancel appointments with their current patients.
We are proposing that clinicians be given the right to convert appointment slots that have been set aside for new patients to serve returning patients who need immediate care.
We are proposing that clinicians get 20 percent of their time to meet patient care responsibilities that include answering email messages from patients, calling patients in need, charting, and communicating with a patient’s relatives or social service representatives. This work, which is critical to ensure the effectiveness of patients’ treatment, is often done during lunch breaks and after-hours, which leads to burnout and clinicians leaving for other jobs.
We are proposing a formalized, focused, and facilitated committee process in which labor and management would work together to expedite development and implementation of systemic reforms to address Kaiser's mental health crisis. Management instead wants only a loose committee process with no structure, no timelines, and no accountability to reach solutions to Kaiser's pressing problems.
Now, as before, when it comes to mental health care, Kaiser’s proposed “solutions” never get to the root of the problem, and often serve to obscure it.
Kaiser touts its newly constructed clinics, but never mentions that it primarily staffs them with its existing workforce.
Kaiser touts hiring hundreds of new clinicians without mentioning that at the same time, many over-burdened clinicians are leaving and tens of thousands of new members are enrolling, so that staffing ratios stay fundamentally the same.
Kaiser touts its tele-psychiatry program without mentioning that telephone assessments are far shorter and less thorough than the face-to-face assessments it used to provide.
Kaiser claims a statewide shortage of mental health clinicians impedes it from improving care, but never mentions that it is undercutting its own recruiting efforts by denying mental health clinicians the same raises given to every other unionized employee and singling out many recently hired mental health clinicians by eliminating their pension benefits, while all other Kaiser employees still receive them.
Kaiser’s mental health “innovations” are really shortcuts. Its initiatives are too often geared toward improving its image rather than its mental health care. Now, its clinicians and patients are at a breaking point.
This is a problem we need to fix now. Patients and clinicians have waited long enough.
In Solidarity,
Sal Rosselli, President
National Union of Healthcare Workers
Mama and Peek — a hummingbird moment.
Hope you have a good weekend everybody!
Happy Mother’s Day!
Hope you have a good weekend everybody!
Spring.
Hope you have a good weekend everybody!