LET'S TALK ABOUT HOPEFUL VOLUNTARY ADMISSIONS by Mary Irwin Butler

Let's talk about hopeful voluntary admissions. We have had four very long ER visits (5-14 hours each) in the last couple of months trying to admit my fear-filled, very psychotic son voluntarily. When my son gets to the point that he's asking to go to the hospital, he's beyond ill and fearful. He battles monstrous auditory hallucinations while he's in crowded waiting rooms with the elderly, sick babies, and patients with infectious diseases. It's horrid for him and potentially horrid for them.

No beds were available in the Philadelphia metro/suburban area within a 50+ mile radius. These four useless ER visits led to exacerbated illness resulting in an involuntary admission which is always more heartbreaking and exhausting. Unfortunately, in our locale, we cannot call or look for available beds on our own. It must be done in a local ER as follows: 

      *Long waiting room wait

      *Triage evaluation (psych patients are rarely prioritized) 

      *Back to the waiting room and possibly another long wait 

      *Med clearance including blood/urine tests, etc. 

      *Psych evaluation by social worker when available 

      *Insurance approval — usually a lengthy process

      *Bed search (typically hours/sometimes days) 

      *Clinical review/approval by the admitting facility if a bed is available 

      *Wait for available transport to the admitting facility

      *Lengthy wait/intake at the admitting facility whatever hour fatigued patient arrives

At times, very ill patients have been known to lay in ER beds from overnight to an entire week+ until a bed becomes available. How terrible that someone seeking mental illness treatment is left waiting so long. Imagine if this happened to someone with appendicitis or broken bones. Understandably, patients with serious mental illness become uncomfortable, frustrated, anxious, and further disturbed. They receive very little attention from ER staff unless they're acting out. Many, including my son, give up and walk out of either the waiting room or the examination room. The process is pretty much the same here for involuntary admissions. They involve the police, lengthy paperwork at the County Crisis Center, and legal approval. So tack on several more hours.  

I've mentioned to several ER docs and nurses, to no avail, that these critically ill patients should have a separate waiting area, be triaged expeditiously to an ER bed, and not be left alone for long periods of time. It's a cumbersome and careless system. The entire process needs to be streamlined and more efficient. It needs to provide timely access to safe and attentive emergency care and in-patient beds.

The mainstream media paint the picture that if only these mentally ill individuals would seek/get the necessary help, then we wouldn't see these ongoing mass shootings. That may apply to a few but truly no one, especially the media, has a clue as to the availability of mental health care, let alone timely/quality care, unless they've walked in our weary shoes. 

Bottom line: We're serving our seriously mentally ill in a very questionable and trepidatious manner, if at all. The availability of in-patient beds is in crisis. It's no wonder. Several of the better hospital psych units in this premier healthcare area have closed (not profitable) in lieu of expanding profitable cardiac units, etc. A crying and growing shame leaving personal and community tragedies in the making...

Mary

Mary

HOW TURNING POINT FAILED MY SON by Laurie Mendoza

Let me count the ways Turning Point failed my son. 

He was released from Napa State Hospital after being there 9 months. Napa was giving him the Invega shot once a month. He came back clear headed. We started going out to dinner together. We went to the movies. We were having good talks. My son handled his affairs. Then Turning Point became his mental health service.

Six months into their program, Turning Point took my son off Invega shots and put him on Prozac. I fought them tooth and nail. He spiraled down to where he became missing and homeless. Turning Point had told him they had no where to house him. They filed a missing person report on him and didn't tell me. When I filed my own missing person report with Sacramento City Police, I learned of Turning Point's missing person report.

My son stayed homeless for almost 2 years sleeping on Sacramento sidewalks. Of course, I was right there with him. Finally, he was 5150d. When he was being evaluated to see if he was competent for trial — which he wasn't - Turning Point showed up for a meeting with the physicians and were royally chewed out. A doctor told them he could not believe how deteriorated my son was. They were ordered to leave the meeting and Telecare, which is no better, took over.

When my son was 5150d, I persuaded the doctor to put him back on Invega. It's been a long crawl but I'm happy to announce he's doing the best of best when someone has serious mental illness. My son is so much better now. What I love most is we can have conversations with little disorganized speech. I want this to last forever but, as we all know, schizophrenia is selfish.

All of these so called mental health services are shitty. All of them. Turning Point, Telecare, Tcore. They are shitty, shitty, shitty. Excuse the bad words but, honestly people, I can't describe them any other way.

Photo credit: Marta MacLean/Flickr

Photo credit: Marta MacLean/Flickr

SOME CHILDREN by Rhonda Hart

Some children grow up to fight wars on foreign soil for causes not their own.

Some children must fight addiction, sometimes their own or sometimes their parents.

Some children are born into poverty and fight hunger, need, and homelessness.

Some children are the victims of bullies and fight just to be treated as a person.

Some children fight physical illnesses and disabilities.

Then, some children fight unseen forces that affect every aspect of who they are and who they can be; what they can achieve and where they can fit in; who they can love and who will love them back. This dreaded unseen force, also known as serious mental Illness, consumes them, their life, their future, their family, and their ability — and the ability of those who love them — to live what others take for granted as a normal life.

 

Photo credit: Bahman Farzad/flickr

Photo credit: Bahman Farzad/flickr

ANOTHER LETTER FROM SOLITARY by Travis Christian

March 9, 2018

Dede,

Thanks for writing me back. Thank you for all that you do for mental health. Good luck with your book. Sorry to hear what happened to your son. I'm sure he would be proud of your effort to help families who struggle with mental illness.

i don't want to die. But exercising has been difficult. I haven't wanted to exercise. I'm depressed. I'm happy you can find some peace by driving in the country and looking at nature. Thank you for reminding me to take it one day at a time. I tend to forget that.

I'm struggling to stay positive. I feel like all the fight in me has been taken out. I pray for your book to be a success. I pray for your heart. This isolation has made me afraid of life. I'm afraid I'm too far gone. If you want you can use my letters on your blog. Hopefully, the next time I write it will be more positive.

Sincerely, Travis

California Men's Colony State Prison
P.O. Box 8101
San Luis Obispos, CA 93409-8101
Travis Christian
CDCR#: bb8099
Cell #: B-1

NOTE: Travis's mom reports that he's been moved out of solitary, temporarily, due to his deteriorating health. He's still in isolation, however, in a critical care bed. She fears for his life.

See related posts:
Feb 3, 2018: Letters from Solitary Confinement
Feb 6, 2018: So Where Do I Go From Here?
Feb 10, 2018: My Letter to A Young Man in Solitary Confinement
Feb 27, 2018: Letter from Travis in Solitary Confinement

Travis

Travis

MANDATED TREATMENT AND RED TAPE by Melinda Nichols Balliett

I spent the day with a client who has schizophrenia and is medicated only because it was mandated he be medicated when he was in prison. We're jumping through hoops to keep him on his meds after his release from prison. 

In our initial phone call with Medicare, we were on hold for an hour. I wanted to inquire why my client cannot pick up the medication that is waiting for him at the pharmacy? I was told my client must first go to the Social Security office to complete his reinstatement of Medicare. Really? A client with paranoid schizophrenia must go wait in a government building with tons of strangers?

As his therapist, I took him to the Social Security office and waited for 3 hours to be told he needs to have a stack of papers filled out and his legal guardian needs to sign something (you know those attorneys that see their client maybe once every two years).  Meanwhile, my client was becoming more symptomatic. With his eyes darting around the room, he became increasingly restless in his chair.

I've established trust with this client, so I am usually able to de-escalate situations for him. But I am furious that finally, when he understands that he needs meds, he has to go through so much red tape to get them. After being released from prison and determined to be disabled, Medicare and Medicaid services should be ready for clients, not barriers for clients.

People with diagnoses of serious mental illness (SMI) should not have barriers to medications. Any gap in medications can lead them to self-medicate on substances like crack, meth, alcohol or heroin. I have clients on all of these substances, and crimes are often committed with the combination of SMI and substance abuse more often then not.

I am a therapist. I can't force my clients to medicate and I can't always make the medications available to them — although I've found myself to be a pretty good beggar for things like United Way funds to pay for meds.  Meanwhile, our community mental health agency is underfunded. We have a whopping 13 beds on our crisis unit and the wait time for new patients to see the doctor is two months out.

As an assertive community treatment (ACT) therapist, my goal is to be part of a team that offers wrap around services to keep clients out of prison. Sometimes I find these clients during outreach (driving around the community). At this point, however, we still need the police and court involvement (thank goodness for mental health court which is my Thursday job) to bring them back into treatment.

If someone knows how we can mandate medication, without the process being abused, before a crime is committed, please speak up.  I believe, once a crime has been committed and clients have been diagnosed with SMI, they should be mandated to take meds. And, for god sakes, the meds should be paid for —  happily — by our government.

 

Melinda

Melinda