TAKING A BREAK. THANK YOU FOR YOUR AMAZON REVIEWS by Dede Ranahan

Dear Sooner Than Tomorrow Readers and Writers:

I’m taking a break from my blog for the next 3 or 4 weeks. I must execute my mother’s small estate, attend to a celebration of her life, and reflect on her life and passing. I’ll also be speaking about Sooner Than Tomorrow at the NAMI Kentucky State Conference. I’m leaving you with some of the reviews readers have written on my Amazon book page. Thank you so much for these comments and recommendations. Reviews are among the best tools in a writer’s toolbox to garner more readers. I appreciate them more than you know.

Away from my blog but always thinking of you. You’re the most dedicated and courageous people on the planet. Have a good month.

P.S. If you’d like a copy of Grassroots 2020: A 5-Part Plan to Address Serious Mental Illness (SMI) to send to 2020 presidential candidates, and to local and state influencers, send me your email and I’ll forward the documents to you. You can also read the plan here in the archives on the right hand side: August 6, 2019, “Please Forward to Those in Your Sphere of Influence.” dede@soonerthantomorrow.com

SOONER THAN TOMORROW — A MOTHER’S DIARY ABOUT MENTAL ILLNESS, FAMILY, AND EVERYDAY LIFE

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AMAZON REVIEWS

kayababy 5.0 out of 5 stars
Thank you for putting your experiences, into words
For so many of us, who have a child with these issues, our experiences have been similar, and we struggle to put them into words. I must say, this diary has been at times the "oh my God, I know exactly what she means" and a flood of tears, while other times a familiar feeling of smiles and happiness from that same place of recognition; it just helps to read it. I am so happy to have this book. It has a sort of sacredness about its story, especially with all of Pat's inputs, so that we get to hear from him, getting to know who he is as well through this excellent book his mother wrote. Thank you again Dede.

Christy B 5.0 out of 5 stars
Well written — heart felt — easy read — honest chronicle of a life ended too soon.
I don't know if "enjoyed" is the right word — very touched by this book. The writing is superb — the chapters short — easy to put down and pick up again. I was engrossed by the family dynamics — daughter, grandmother, mother, sister. The entries about the grandkids are delicious. Pat comes across as a highly intelligent, musically talented, funny guy. Loved his FB posts. A must read. Highly recommend.

Erin Eisner 5.0 out of 5 stars
So many reasons to read this great book!
I found this book interesting and important in so many ways! The author writes with an amazing sense of humor and compassionate insight about every thing from her 101 year old mom and grand-kids, to the ants invading her home. She brilliantly weaves in her late son’s poetry and Facebook posts, which gives true timely context, and reveals how she interpreted both monumental and mundane events she encountered in the year before her beloved son would unexpectedly and mysteriously pass away. While gut-wrenchingly tragic in the end, it has so many uplifting moments I found myself deeply engaged and inspired to learn more about many things. It made me want to read. It made me want to write. It made me want to live. It made me want to hold my two young babies a little tighter and pray they will be spared from mental illness, and if not that I will have the same patience, love and resolve the author had in doing all she could in a climate that makes nothing in this realm easy. To the author—thank you for sharing with the world your beautiful stories about your family and life in general, and thank you for your fight and efforts to improve mental health conditions and policies in this country, and for giving support to other families going through their own mental health challenges. I hope you have and will continue to write more not only for your own peace, but because your words and stories must continue to be shared and heard. You don’t have to have a close family member with mental illness to benefit and appreciate this book— if you are a human on this planet who can read English I highly recommend you read Sooner Than Tomorrow because it has much in it for everyone to ponder.

Paula Quertermous 5.0 out of 5 stars
Dede Ranahan shares a glimpse families endure while trying to get mental health help in time
This book has moved me deeply. Dede Ranahan captures the slippery chasm family members with serious mental illness try to navigate to have some quality of life — and in spite of lack of enough good services. Dede, your writing mesmerized me!! I can relate so much as the mother of an adult daughter with SMI. Every day can contain an element giving you a surge of motherly hope — or a crushing incident that spikes to fear for your child. The exhaustion from living in long term doubt requires support. This book is a gem of information!

L. Turley 5.0 out of 5 stars
I highly recommend this book.
I read books these days in short spurts, often just a few pages at a time, especially when the material hits me in a way that I need to stop and process before continuing. This book is like that for me. It is both a daily journal of everyday events and yet, within those events there is a deep, insightful look at a life that is shared with us for a purpose. I had been waiting until I finished this book to write a review, but it may take me awhile to finish, as I sit and savor these snapshots glimpses into the lives of the individuals within. Dede shares her life and her innermost thoughts in a down-to-earth way as she allows us to walk with her through the journey of her son's mental illness, and reminds us that we are not alone, but we walk together. For those who share this journey and share her prayer for change to come "Sooner Than Tomorrow” and for those who are fortunate enough not to share the journey, but who wish to understand, I highly recommend this book.

NO STORIES THIS WEEK by Dede Ranahan

My 101 year-old mother, Evelyn or GG, is in the hospital and that’s where I’ve been every day for a week. My family and I don’t want her to be alone when she passes. She doesn’t want to go :-( She’s always been a fighter (stubborn might be another word :-) We don’t want her to leave, either, but her quality of life is deteriorating quickly. Please hold good thoughts for her.

My mother, Evelyn, and me 1945. I love you, Mom. It’s okay to go. Pat’s waiting for you. He wants to give you a hug.

My mother, Evelyn, and me 1945. I love you, Mom. It’s okay to go. Pat’s waiting for you. He wants to give you a hug.

PLEASE SHARE WITH THOSE IN YOUR SPHERE OF INFLUENCE by Dede Ranahan

I believe that serious mental illness (SMI) should not be a footnote to other issues, i.e., gun violence, and that it needs to be recognized and addressed as its own issue. I'm reposting the 5 part plan developed by grassroots advocates from across the country. It's not comprehensive but it's a beginning.

Before SMI becomes the victim — responsible for gun violence — and before politicians use it more and more as a scapegoat, please join us. Send copies of this plan to local, state and federal representatives. They need to be educated. They need to step up and help 10 million SMI individuals and families who fight every day for life and death services.

Post your email in the comments section below, or send it to me at dede@soonerthantomorrow.com. I'll send you the cover letter, plan, and additional ideas so you can forward them to those within your sphere of influence.

A FIVE-PART PLAN TO ADDRESS SERIOUS MENTAL ILLNESS (SMI)

FOR ALL 2020 PRESIDENTIAL CANDIDATES

PLEASE ADDRESS THESE TOPICS IN YOUR CAMPAIGN APPEARANCES AND DEBATES

1. RECLASSIFY SERIOUS MENTAL ILLNESS (SMI)) FROM A BEHAVIORAL CONDITION TO WHAT IT IS, A NEUROLOGICAL MEDICAL CONDITION WHY RECLASSIFICATION IS IMPORTANT
Reclassification will unlock more research funding and help eliminate discrimination in treatment, insurance
reimbursement, and the perception of SMI as “behavioral” condition. SMI is a human rights issue. NIMH ranks
SMI among the top 15 causes of disability worldwide with an average lifespan reduction of 28 years.
PRESIDENTIAL ACTION
* Create a cabinet position exclusively focused on SMI.
* Push for Congressional appropriations to include schizophrenia in a CDC program that collects data on the
prevalence and risk factors of neurological conditions in the US population.

2. REFORM THE HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT (HIPAA)
WHY HIPAA REFORM IS IMPORTANT
Overly strict HIPAA laws make it extremely difficult for families and caregivers to partner in the treatment of their loved ones, resulting in important life-saving medical information gaps. By eliminating this barrier, family support will be strengthened, reducing the chance of relapse, homelessness, imprisonment, and death.
PRESIDENTIAL ACTION
* Work with legislators to change HIPAA law to ensure mental health professionals are legally permitted to share and receive critical diagnostic criteria and treatment information with/from parents or caregivers of SMI.

3. REPEAL MEDICAID’S INSTITUTES FOR MENTAL DISEASE EXCLUSION (IMD)
WHY IMD REPEAL IS IMPORTANT
IMD repeal will increase the availability of psychiatric inpatient beds. The IMD exclusion is not only discriminatory of those suffering from neurological brain disorders, it is also a leading cause of our national psychiatric hospital bed shortage. It prohibits Medicaid payments to states for those receiving psychiatric care in a facility with more than 16 beds who are 21-65, the age group with the most SMI.
PRESIDENTIAL ACTION
* Work with legislators to repeal the IMD exclusion.

4. PROVIDE A FULL CONTINUUM OF CARE
WHY A FULL CONTINUUM OF CARE IS IMPORTANT
A continuum of care ensures that SMI patients receive early intervention at all stages of their illnesses, longterm care when needed, and follow-up treatment (medications and therapies) when they’re released. It reduces visits to jails, ER’s and hospitals, homelessness, and morgues. A continuum of care provides life-time management.
PRESIDENTIAL ACTION
* Create federal incentives to states which are addressing a full array of inpatient, outpatient, and supportive
housing care.

5. DECRIMINALIZE SERIOUS MENTAL ILLNESS (SMI)
WHY DECRIMINALIZATION OF SMI IS IMPORTANT
People suffering from other neurological conditions like Alzheimer’s and dementia can get treatment promptly without being kicked out of their homes to wander the streets until they are arrested and put in jail or prison rather than a hospital. Serious mental illness is the only disease where the doors to treatment are shut unless a crime is committed. This is pure and simple discrimination with the disastrous results we see in our country today — homelessness, incarceration, the disintegration of families, and death.
PRESIDENTIAL ACTION
* Work with legislators to change “must be a danger to self or others” criteria.
* Work with legislators to change involuntary commitment criteria, alleviating the subjective nature of “gravely
disabled” and redefining it in objective terms based on scientific medical need for treatment. Psychosis, like a stroke, is a traumatic brain injury and needs immediate treatment for the best outcome.

PLEASE INCLUDE SMI IN YOUR PLATFORM by Dede Ranahan

Hi Mental Health for US

Just discovered you and your platform asking 2020 political candidates to talk about mental health in their campaigns. I see no specific mention of serious mental illnesses (SMI) such as schizophrenia, schizo-affective disorder, bipolar disorder, etc. Some people are not able to recover from SMI and languish in prison, in solitary, in not-so-good care homes or in their parents’ back bedroom for years and years.

I belong to a dozen Facebook groups of families of the SMI. Their stories are horrific and from across the nation. They’re not able to find help anywhere.

I want to support your efforts. I’ve been sending letters to candidates and calling on Facebook and on my blog for 2020 candidates to step up, speak about, and put forth national plans for SMI that do the following: Reform HIPAA, repeal the IMD exclusion, do brain research into these insidious brain diseases, provide for long-term care and short-term outpatient services, improve access, provide housing, supported education, and family supports. Not simply mental health. Not simply drug and alcohol addiction. Serious mental illness.

Would Mental Health for US be willing to expand its platform to include SMI - specifically spelling it out, not simply lumping it into mental health?

I hope your answer is yes.

You can read stories about SMI individuals and families — across the US - that I’ve been posting for 31/2 years on my website and blog. You can also read my own story in my book about my and my son’s struggles for over 25 years to get help for his SMI. He died in 2014 on a hospital psych ward. He was transferred, without my knowledge, out of county (lack of beds), his records weren’t forwarded with him, and I couldn’t get doctors to talk to me (HIPAA) even though I was on my son’s Advance Care Directive.

I unwittingly captured the last year of Pat's life in my book which, among other things, includes his story and many stories of individuals and families being failed by the system.

I will sign on and volunteer to help you once I’m satisfied that this undertaking includes SMI and specifically mentions it in your platform.

Thank you. I look forward to hearing from you.
Dede Ranahan

www.soonerthantomorrow.com
A Safe Place to Talk About Mental Illness in Our Families

Sooner Than Tomorrow — A Mother’s Diary About Mental Illness, Family, and Everyday Life
By Dede Ranahan with Patrick Ranahan
http://www.bit.ly/soonerthantomorrow

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https://www.mentalhealthforus.net Please read this platform and send a message asking that it include SMI specifically.

http://www.bit.ly/soonerthantomorrow