TOMORROW WAS YESTERDAY - INTRODUCING THE AUTHORS (4) by Dede RanahanQaaw3e

Introducing authors of the 65 stories in Tomorrow Was Yesterday - Explosive First-Person Indictments of the US Mental Health System — Mothers Across the Nation Tell It Like It Is.

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FROM NORTH CAROLINA
Gwendolyn Bartley: “It’s Kind of like a Daily ‘Sophie’s Choice’”
Gwendolyn is the mother of five (now adult) children through the blessing of adoption and natural birth. She is the founder and executive director of Amazing Grace Advocacy, a non-profit that supports families raising children with brain disorders in Concord, North Carolina. Gwendolyn serves on several community, state, and national initiatives to advocate for access to appropriate services for children with serious emotional disturbances (SED).

Sherri McGimsey: “What Would You Do?”
Sherri is a wife, mother of two sons, grandmother, business owners for 39 years, and a national advocate for SMI. Her eldest son, Matt, has schizophrenia. Sherri’s a member of NAMI South Mountains, North Carolina and serves on the NSSC (National Shattering Silence Coalition). She’s a trainer in NAMI’s Family-toFamily class and in the Crisis Intervention Team (CIT) for police and law enforcement. “A Mother’s Prayer for Mental Illness” guides her on this journey.

FROM OHIO
Nikki Landis: “Nikki and Kevin”
Nikki is the mother of five and homeschools her children on a small farm in rural Ohio. She loves to read and learn new perspectives. Her childhood dream was to have a large family, live in the country, and write. She continues to pursue her dreams despite how SMI has affected her life and she encourages everyone to do the same.

FROM OKLAHOMA
Audrey Adams Auernheimer: “For Now I’m Thankful Adam is Alive”
Audrey is the mother of four children, three of whom have been diagnosed with mental illness. Her son, Marty, was diagnosed with schizophrenia at age 22. Her only daughter Candace was diagnosed with depression with suicidal ideation at age 12. Marty died at 28 and Candace died at 26 to suicide. Her 30-year-old son, also diagnosed, lives with her. The youngest son remains untreated and barely functional, mostly due to anosognosia.

FROM OREGON
Carole McAfee: “A Mother’s Fight”

Kecia Bolken Speck: “I’m Never Calling the Crisis Team or the Police Again”
Kecia is the mother of two adult children and currently lives in rural Oregon. She works in pediatric occupational therapy and takes care of her 29-year-old son full-time. Her dreams for the future are to change the education of first responders, to ensure the funding of skilled crisis teams, and to decriminalize serious mental illness. “My family’s lives depend on it. Nobody should ever have to go through this alone.”

Sharon Underwood: “Why Is This Okay?”
Sharon is a single mother of four. Her mentally ill son Tim is her youngest child. Sharon’s been a caregiver for the elderly for over 25 years.

FROM PENNSYLVANIA
Holly Alston: “Mommy Please Clear My Name”
Holly’s son suffered from schizophrenia and other mental health issues. He was in prison for over seven years while his mental health was ignored. When Terrell was in isolation, he would scrape his eyebrows off and pluck out his eyelashes. “He was released from prison 8/8/16 and by 8/20/16 he was dead.”

Mary A. Butler: “Let’s Talk About hopeful Voluntary Admissions”

FROM TEXAS
Joyce Berryman: “Stuck in Texas”

Channin Henry Williams: “I See Change Coming”
After 14 years of giving so much of herself to meet her daughter’s special needs, Channin is now focusing on her husband, hobbies, and finding her way. “Raven left the institution on her 18th birthday. Soon all communication stopped. My greatest nightmare came true. How should a mother like me grieve or even feel? It is my supportive family and faith in Jesus Christ that has given me strength and hope that change is coming.”

FROM UTAH
Heidi Franke: “I Am Livid. Shaking”
Heidi is an RN. She’s been living through the diagnosis of her youngest son’s pervasive mental illness and struggles with addiction. Her goal is to empower parents to speak up to help overcome obstacles to care for their children. “By telling our stories, we give permission to others to start telling theirs.” Heidi makes mending herself a personal daily engagement project “as we must put on our oxygen mask first to help those beside us.”

FROM VIRGINIA
Pat Wood: “Our Son’s Preventable Death”
After his first year of college, Pat’s elder son was diagnosed with bipolar disorder. “His death by suicide at age 38 was the outcome we’d fought against for years and was our worst nightmare come true.” Pat’s younger son also has a mental illness. “There have been many medications, hospitals, therapists, psychiatrists, and less-than-successful battles to get the services my children needed. My younger son’s uncertain future remains my concern and focus now.”

FROM WASHINGTON
April: “Helping Mr. K.”
April is a wife, retired direct marketing creator, and sibling to Mr. K. Her mother died seven years ago with no plan in place for her brother’s care other than the designation of “Social Security Payee.”

Jerri Clark: “My Goal Is Not Happiness but Human Understanding”
Jerri advocates for treatment access in Washington State where she started Mothers of the Mentally Ill (MOMI). She and her husband (married since 1994) have a daughter and two grandsons. Their son Calvin died from suicide March 1, 2019.

Jerri  Clark with her son Calvin.

Jerri Clark with her son Calvin.

WHEN COVID-19 IS CONTAINED, "EXTRA" BEDS SHOULD BE USED FOR SMI by Dede Ranahan

CALL TO ACTION
US deaths from COVID-19 have climbed to more than 12,000 and the whole country is focused on ending this pandemic. The same determined attention needs to address another “pandemic” that is growing and ignored — serious mental illness (SMI). When the COVID-19 pandemic is contained (this might require many months), newly constructed field hospitals and other “extra” COVID-19 beds should be retained to serve the seriously mentally ill. These resources must not be co-opted or lost. Which individuals/organizations have the influence and political will — right now — to take this on, plan, and make it happen? Suggestions?

BACKGROUND
1) According to the National Institutes of Mental Health (2019), nearly one in five US adults lives with a mental illness (46.6 million people in 2017).

2) The Centers for Disease Control and Prevention (CDC) reports that more than 50% of the population will be diagnosed with a mental illness at some point in their lifetime. One in 25 Americans lives with a serious mental illness, such as schizophrenia, bipolar disorder, or major depression.

3) A 2016 paper by Treatment Advocacy Center finds that serious mental illness has become so prevalent in the US corrections system that jails and prisons are now commonly called “the new asylums.” Los Angeles County Jail, Chicago’s Cook County Jail, or New York’s Riker’s Island Jail each hold more mentally ill inmates than any remaining psychiatric hospital in the United States. Overall, approximately 20% of inmates in jails and 15% of inmates in state prisons are estimated to have a serious mental illness. Based on the total inmate population, this means approximately 383,000 individuals with severe psychiatric disease were behind bars in the United States in 2014 or nearly 10 times the number of patients remaining in the nation’s state hospitals.

4) Mental Illness Policy Org estimates that close fo half of all Americans with mental illness aren’t getting treatment.

5) As stated by Constellation Behavioral Health, the cost of untreated mental illness is high. Patients hospitalized with serious mental illness are much more likely to be readmitted in the next 30 days if they do not receive follow-up treatment. The average hospital cost for a patient readmitted for a mood disorder is $7,100. Mental illness and substance abuse often co-occur, increasing the risk of death from overdose. There were 70,237 drug overdose deaths in the US in 2017. As many as 90 percent of cases of suicide are attributed to mental illness.

6) Wikipedia notes that the US has one of the highest suicide rates among wealthy nations. In 2018, there were 48,344 recorded suicides, up from 42,773 in 2014, according to the CDC's National Center for Health Statistics. On average, adjusted for age, the annual US suicide rate increased 24% between 1999 and 2014, from 10.5 to 13.0 suicides per 100,000 people, the highest rate recorded in 28 years. Due to the stigma surrounding suicide, it is suspected that suicide generally is underreported. 

7) According to the Psychiatric Times (2016), the shortage of psychiatric beds in the US is a major problem. Nevertheless, many states continue to decrease the number of state hospital beds. Given findings by various experts, it seems reasonable to establish a range of 40 to 60 psychiatric beds per 100,000 population as a minimum standard.

CALL TO ACTION
US deaths from COVID-19 have climbed to more than 12,000 and the whole country is focused on ending this pandemic. The same determined attention needs to address another “pandemic” that is growing and ignored — serious mental illness (SMI). When the COVID-19 pandemic is contained (this might require many months), newly constructed field hospitals and other “extra” COVID-19 beds should be retained to serve the seriously mentally ill. These resources must not be co-opted or lost. Which individuals/organizations have the influence and political will — right now — to take this on, plan, and make it happen? Suggestions?

Photo credit: Valerie Everett/Flickr

Photo credit: Valerie Everett/Flickr